Why I blog.

Tonight I will talk about my purpose for this blog. When I first started this blog, it was to keep family and friends posted on Steph's progress. Since then, it has evolved into something SO much bigger.

It turned into a place for me to share our WHOLE story. I have been able to let you all in, and have been received with open arms. So many faithful readers have shared in our struggles, but have also taken the time to read about our everyday lives together. You have smiled through slide shows of our happy time pictures. You have celebrated anniversaries and birthdays right along with us. You have cried as we said goodbye to family members. You have read along as I, sometimes selfishly, turned this blog into a place for really cheap therapy. YOU, even though many of us have never met IRL (in real life), have become family.

It has served as a place for us to be heard and request your sweet prayers that are so precious. It is a place where I have had the privilege of sharing the story of this amazing family. Most importantly, it is a place where I am able to share the gospel. I was talking with Jackie (Scot's cousin) today about this very thing. I am not very good at evangelism. I am great about talking about my faith with other believers, but unfortunately witnessing to non-believers is not my specialty. Maybe I'm afraid of an argument in which I would most likely fail miserably. Maybe I'm afraid of making people uncomfortable. That is why I love this blog. I feel like maybe it is preparing me for the task that I am instructed to take on. Writing comes easy to me...in comparison to talking face to face. This fact was made painfully obvious to me as I read my quotes in a recent article where I was clearly very comfortable in conversation mode with Michael Stacy from the Springfield News-Leader. What I do know, is God has opened up this little space on the web for me to share my faith...our faith, with the world. What a blessing. I pray that my words are exactly what HE would want them to be.

Today, this blog has taken on a new life. For now, the blog is to keep you posted as we watch something we hoped we would NEVER have to. I feel nervous every time I hit "publish post" for fear I may give away too much. So many of you know how private our dear friend has been throughout her life, but at this point it is important for us to share her message. You MUST listen to your body. You MUST be your own advocate. You MUST make people listen if you feel something isn't right. Reading my previous posts, I worry that it may seem we are giving up. I'm here to tell you, that is not the case. We will never give up. We may be fighting for different things, but we will never give up. We will not give up the fight to keep Steph's pain under control. We will not give up on keeping life as normal as possible for these sweet children. We will never stop sharing our story of how God has carried us through this.

My other purpose here today involves one of my personality traits that sometimes can be a major flaw. I'm a fixer. I want people to be happy. When the people I care about the most are sad, my world is not right. Heck, when complete strangers are sad, so am I! Well, I can't fix this. But I can try. I know that many of you have been so touched by this story because of the two precious boys involved. In order to help I want you all to understand, right now....these boys are okay. Their days are FILLED with loving Grandparents, aunts, uncles and a dad who is nothing short of AMAZING. They spend hours outside in a little paradise with their best friends in the world swimming, riding bikes and throwing back more Popsicles and homemade goodies than you could shake a stick at. We try to keep the house relatively quiet, but they know at ANY time ANY of them can sneak upstairs and love on our girl. It's sweet and you never know when the mood will strike them. And it does....often. When they get tired, they love to retreat to the basement. They throw on Nanny's t-shirts and cuddle up on the couches and usually fight over what movie they will watch on Netflix. They like to turn the lights off and have popcorn and pretend they are at the movies. There are nights like tonight when sweet friends come to take them to the REAL movie theater and they look forward to it all day. Tomorrow night Drew will have a sleepover with a very special friend who has some very AMAZING parents and we love them! Some days we get special surprises like we got today. Papa Ed flew over the house in the helicopter!! It was really exciting and definitely the highlight of the day! Here are a few pics of everyone waving at our special visitor!

It's the little things in life that bring us SO much joy! Thank you Papa Ed!!

So there you have it friends, if you really wanted to know....that's why I blog! Keep praying for relief from the pain. Steph had a rough afternoon and my mom was talking to the nurse about what we need to do next. Please pray for answers and above all...comfort. Thank you so very much!