Thursday, July 31, 2008

News

Steph had her scan yesterday. She does not meet with her oncologist until August 7th. (which I believe in some countries is considered cruel and unusual punishment, but that's neither here nor there.) However, she did call Dr. Helen yesterday and ask her if she could call her with the results when they were available. Dr. Helen said it would probably be too late to call her that day but she would call her in the morning. WELL, she called last night and was pretty excited. Here is what we have gathered so far..keep in mind, this is a preliminary report and they have not had time to compare the CT scan with the PET scan. Based on the PET scan there has been...and I quote "ANOTHER SIGNIFICANT reduction in cancer activity!" We will know more after the appointment with Dr. Hoos. But for now we are very hopeful. Keep praying and I will post more later!! Have a blessed day!

Tuesday, July 29, 2008

Smile Box Slideshow

Here is a slideshow of all of the pictures from the balloon ride! Please keep Steph in your prayers over the next few days as she prepares for her scan tomorrow. BIG day. Have a blessed day and enjoy!

Click to play Hot Air Balloon
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Monday, July 14, 2008

Up Up and Away!

Last night Steph got a special treat! This year for my Mom's birthday my Dad got her a hot air balloon ride. They called yesterday and said the weather was just right and that they would be going up that night. My mom called Steph and told her the plan and insisted that she come with Scot and the boys to watch them take off. Just as they were about to hop on board, my dad said, "Well Steph, better get ready because you are going up!" She was completely surprised! So Steph and my mom took off in Springfield and landed at Nixa Jr. High. They said it was an amazing experience. I will post pics when I get them from my mom but I just wanted to share with everyone! I also wanted to thank Rick and Karen Hewlett from Rick's Automotive and our DEAR friends Pam and Steve White who made last night possible. You have no idea how special it was for my Mom and Steph to finally share an experience that didn't involve cancer, chemo or radiation. Thank you! And of course, thank you Lord for the beautiful evening and a safe landing!

Friday, July 11, 2008

A Call to Prayer

Steph had an appointment with Dr. Hoos. She will be scanned again and on August 7th we will get the results. It is on that day that we will know if she is in remission or if we need to pursue other treatment options. PLEASE pray that the cancer will be in remission. Everyday pray that the radiation and chemo worked. I will post as soon as I can and let everyone know what the outcome is. If it takes a while, don't panic and assume the worst! I am a bridesmaid in my brother's wedding the next day so it will be a very busy weekend but I promise to try my best!!! Please just pray until then for good results as well as strength and peace for all of us.

Thursday, July 3, 2008

PS

I put a few new websites on the "links list" if you are looking for something to do. Just thought I would raise some awareness about some different issues that have affected my family and friends. Take a look!

Day of celebration!

Yesterday we celebrated Steph's last radiation treatment. We really thought we would be jumping for joy and partying it up, but not really. I hate to be a downer but as I have said before, this is real. We were told on Monday that the tumor cannot be removed at this point because it is still too big. Bummer. We haven't really understood why we are waiting 8 more weeks for the next scan. This tumor (which was NOT there when she had surgery) only took 6 weeks to grow about 4 inches. The last thing we want is for it to get bigger again. Dr. Helen said that the radiation and chemo will continue to work between now and the time she is scanned again. She said that it is a possibility that is could be completely gone in 8 weeks. She also talked about how one of our biggest concerns is that colon cancer is NOTORIOUS for spreading to the liver. She said right now we need to do our best to focus on the miracles that we have already been blessed with. We need to keep a positive attitude because Steph has already beaten a lot of odds. I stand firm in my belief that she will continue to do so. I can't let myself believe anything else at this point. I know that if I allow myself to think about the worst, this will be Satan's chance to take control of my heart. I WILL REMAIN FAITHFUL. WE WILL WIN THIS BATTLE. Right now, we need some very specific prayers. Please pray:

1. That the radiation will continue to work and get rid of the tumor completely.
2. That the cancer will not spread to her liver.
3. For Steph and Scot's emotional health.

Just keep praying and I will update when I know more. Thank you all!!!

Friday, June 27, 2008

Counting the days!

Counting today, Steph has 5 radiation treatments left. She meets with Dr. Helen on Monday and has a lot of questions. Please pray that she gets the answers that she needs. There are a lot of things that are confusing to us right now but we have faith that Dr. Helen is going to tell Steph what she needs to know. We are looking forward to celebrating the end of radiation. She will be rescanned six weeks after to see where we are. Keep praying and I will post when we know more! Have a great weekend!

Monday, June 16, 2008

Radiation Update

Today was Steph's weekly meeting with Dr. Helen. She and my mom had some questions about what "significantly decreased" meant. Dr. Helen explained that if the tumor was at 100% on day one of radiation....it has shrunk to about 30-40%!!!!!!! She was VERY excited and also went on to say that she was very surprised because normally people who don't respond to chemo don't respond to radiation either. It was incredible news. We have also been told that since it is shrinking, there are more options available to her now if the radiation doesn't completely get rid of the tumor. Keep praying and PRAISING GOD for this wonderful news!!!!

Tuesday, June 10, 2008

Facing the Giant

Today as I was watching my "little" girl at her first big girl gymnastics class, my mom got a phone call from Steph. She had a PET scan done today and was told she would have the results tomorrow. HOWEVER, she got a call today from Dr. Helen saying that she had the results and was REALLY EXCITED! The tumor they have been "aiming" at has decreased significantly in size!!!! From what I understand she will adjust her future treatments now because it has gotten smaller! This news came at a time when we all REALLY needed it. The past few weeks have been really hard on us all. God is so good and I know he is in control. He is listening to all of our prayers...so keep it up!!! I realized a few nights ago that I was getting a little down and starting to let my faith waiver a little. So I prayed. I prayed for God to direct me and lead me to something that would offer some comfort. The next morning, I was cleaning out my closet and picked up a stray DVD that was on the floor. It was "Facing the Giants." I'm so glad God has a sense of humor. He knew that if it wasn't on the floor, I would never find it because I would never think to look in the place it belonged! I began thinking about the movie and the team struggling to win games. Their coach told them that they were going to praise Him if they won, and they would praise Him if they lost. I won't ruin the ending for those who haven't seen it, but you can probably imagine what happens next. So I took a deep breath and thanked the Lord for the subtle message. I began to count my blessings and thank him that Steph has been given the chance to fight. We said in the beginning that she will beat this...all she needs is the chance to fight. Here's her chance and SHE WILL BEAT IT! So imagine my surprise when just a few days later we get this news! I know He is good, but man that was fast!!!! Thank you Jesus for never failing to amaze me!

Tuesday, May 27, 2008

Ink

Steph has 3 small dots tattooed on her body for radiation so they can get everything lined up exactly right each time. I suggested that she cover them up with REAL tattoos when she beats this. Vote on your favorite!

Normal...I miss you.

We spent Sunday with the Phillips family at my parent's house. It was a wonderful day! Every now and then I was able to pretend that everything was normal. I wish Steph could do the same, but I know it's on her mind every second. But the day was as close to normal as we can get these days. I was quickly jolted back to reality when my dad asked Claire what she prays for at "Super Church" on Sundays. She said...and I quote..."I pray for Steph because she has cancer and has to go to chemo." So many emotions flooded my soul. I was shocked because this is the first time she has EVER said anything like that. I have told her that we need to pray for Steph because she is sick but as far as details, she has picked all of that up by listening to us talk. I was proud because she cares so much for other people. I was sad because I was looking at four babies whose lives are so affected by cancer, whether they realize it or not. I want so desperately for cancer to go away. It's a feeling I'm not familiar with. It's gut wrenching. It's almost primal. I haven't spent much time with Steph lately because of her schedule and the fact that my kids have been sick and we don't want to pass anything on. But this weekend I got to spend hours with her and I miss that. She is like a sister to me and I miss her. I miss just being normal. Just. Normal.

Sunday, May 18, 2008

"We must destroy it."

My mom and I had picked Claire and Drew up from school a few weeks ago and then took them for ice cream. I don't remember what we were talking about, but Drew just said "We must destroy it." We asked him what he was talking about. He looked up and said, "Well, that's what Peter Parker says to Dr. Octavius." We aren't exactly sure what brought it up, but we couldn't agree more! In honor of Drew who LOVES superheros, check out the new poll and cast your vote!

Drew understands that Mommy is sick (even though sometimes it is hard for him to REALLY understand because she doesn't look or act sick.) and that she has an oncologist that is going to make her better. Doctors have been a part of his life since the minute he was born and he goes to the cardiologist on a regular basis. He has visited my dad in the hospital on NUMEROUS occasions and loves to go to his appointments with him. He even got to go to the doctor with my mom which NEVER EVER happens, because she NEVER goes to the doctor! (She did find out she had an ear infection, sinus infection and pneumonia!!) My point...doctors are a regular part of his life so it hasn't really worried him that Mommy goes all the time!

STEPH, is doing well. The first few days of radiation were a little rough, but she is adjusting. She got to run the bases with Drew at his first tee ball game and I will post pictures very soon, because they are priceless. They are all having a great time participating in Drew's first REAL TEAM! He told Steph that he really wished Claire was on his team. Maybe next year Drew! Which brings me to my cute story for the day.

Steph: "Drew, is Riley your new girlfriend?"
Drew: "No Mom, I'm just havin' fun with her!"
Steph: "So who is your girlfriend?"
Drew: "CLAIRE is my girlfriend! I will ALWAYS love Claire."

I'm telling you! Mark your calendars for the summer of 2028! It will be the wedding of the century!

Monday, May 12, 2008

Radiation

Steph had her first radiation treatment today at 3:30. My mom is sick (which NEVER happens) so my dad stepped in and took her to her first treatment. I haven't heard yet how it went so I'm not exactly a wealth of information today! I just wanted to post to let everyone know that she has started radiation and will do SEVEN weeks!! She will go Monday-Friday and most likely will be going at the same time everyday. So if you get a chance between 3:30 and 4:00, say a prayer for Steph. Pray that this radiation will work. We have been so encouraged by her wonderful doctor. (Dr. Helen Kim is AWESOME!) She is positive and upbeat with a great sense of humor. She has assured us that she will do everything in her power to get rid of this nasty old cancer!! So keep praying and I will post again very soon! Oh and HAPPY MOTHER'S DAY to all the moms out there!

Wednesday, April 30, 2008

Blogger impaired

I am such a nerd! I meant for the "Look Alike Meter" to be posted on my personal blog. I wondered where it went but just assumed I was computer illiterate and didn't do something right. Then I come to the blog today and here it is! I'm sure all of you really care about how much my baby boy looks like me. (3% more than daddy, read it and weep Brian!) Anyway, one of these days I will catch up with technology. Of course, then I will be 5 years behind again. Oh well, that's what kids are for.

Friday, April 25, 2008

Well....

Steph had her appointment yesterday. We didn't hear EXACTLY what we wanted to hear, but also realize it could have been much worse! The lymph nodes that have been inflamed for a while are still that way. Unfortunately, that means that there is still cancer in there. The good news is that there are no new tumors or masses. We will press on with 4 weeks of radiation, 20 minutes a day......everyday. The plan to stay on the Avastin was changed and she will now be on Xeloda. It is in pill form but can cause the following. diarrhea, nausea, vomiting, stomach pain, constipation, weakness, tiredness, dizziness, headache, sleeplessness, dry or itching skin, and dehydration. They also warned her that it can cause tingling, numbness, pain, redness, or swelling of the hands or feet. Sounds pleasant huh? Steph was very discouraged and asked if the last 6 months of chemo was all for nothing. Dr. Hoos said, "No, to be perfectly honest, if you hadn't done that we would be calling in hospice right now." For all of us it was a feeling much like being punched in the stomach and smacked in the face all at once. I'm not sure if ANY of us, including Steph, really grasped the severity of her illness. Part of it has to do with the fact that Stephanie Phillips is THE strongest and toughest woman I know. Just to look at her, she doesn't look sick. More often than not, she doesn't ACT sick. So to have the doctor tell us that was eye opening to say the least. SO, we need prayers now that we can get rid of the rest of this stupid cancer. I will let you all know when we get radiation scheduled so we can all take a few minutes a day to lift Steph up to the Lord during her treatment. We are praising God today that there was nothing new on the scan and thanking him for getting us through the past 6 months.

Thanks to those of you who sent birthday wishes!! I had a good one and I'm ready for my hot date tonight with my husband!

Wednesday, April 16, 2008

April 24th is the day!

Steph has an appointment with her oncologist on April 24th. I have a great feeling about this. You see, April 24th is the day I graced this earth with my presence just 28 short years ago. So, as you can tell, only wonderful things happen on that day. (wahhhh wahhhhh!) I mean really, Kelly Clarkson and Barbara Streisand were born on that day too. How can you go wrong? But seriously, I wish we didn't have to wait that long for the results of her scan. But as my Dad says, "you can wish in one hand and....." You know the rest. If not, then you probably don't have any Okies in your lineage.

Enjoy the warm weather and if you live in the Springfield area, hold on to the little people in your life, they may blow away. Man it's windy!!!

Saturday, April 12, 2008

Flooding

OK, so I have been lucky enough (unlike my parents) to avoid any serious water getting into our basement. However, it's still like a flood around here! My good friend Jenny is now the proud recipient of a shiny new pacemaker and defibrillator. (she is 27 with a wonderful husband and a 2 month old baby) Steph had her scan yesterday. (results still pending) My Aunt Donna and our close family friend Steve both lost their mothers on Thursday. So I'm trying to keep it together....and I go down with strep. Thanks to my WONDERFUL mother-in-law I didn't have to worry about the kids while my dad took me to the doctor and Brian finished up his work day. I am still praising God for the miracle he performed in Jenny. I am praising him for healing me as I am on the mend today. I continue to pray for Steph's results and for Him to give Aunt Donna and Steve and their families strength in this difficult time. I praise Him. Without Him, I know I couldn't deal.

I will post as SOON as I know anything about the scan but we don't really know when that will be. The PET scan should show if there are any cancer cells left. This is a biggie so keep praying!!!
Love
Chrissy

Thursday, April 10, 2008

No News is Good News!

It's been a crazy few weeks in my life. You know the saying..."when it rains it pours." It's been pouring!!! (Literally and figuratively!) Steph is enjoying some time off from treatment. She has gone back to school and recently went to Tampa, FL for a meeting. Tomorrow she has a scan so please be praying that everything comes back okay. I will post as soon as I hear anything about those results. She will be starting radiation in a few weeks (I think) so I will let everyone know how it goes. Thank your for your continued prayers. It seems like 50 years ago when this whole thing started but your prayers are just as important today as they were then! So thank you thank you thank you!!!

Wednesday, March 26, 2008

The Melton Family

I received an e-mail this morning from Ms. Holly (Claire's teacher) saying that her husband passed away at 12:45 this morning. He was diagnosed in October with Melanoma and now, he's gone. My heart is broken for Holly and their two beautiful little girls. Her blog www.nevergonnabreakmyfaith.blogspot.com sheds a lot of light on what a wonderful man he is. I have been inspired by their strength and their faith. They have changed me. I told Holly that because of them, I tend to stop before I get mad about picking up a pile of dirty clothes on Brian's side of the bed. I think twice before I get grumpy about him coming home a little late. Instead, I thank God that I had him here last night to make that mess. I rejoice because he has an amazing job that keeps him busy into the evening and provides us with a roof over our heads and food on the table. I didn't even get upset when that table that holds the food became a canvas for Cohen's recent hobby...fork carving. It puts things into perspective. The endless piles of laundry mean I have 3 other beautiful people in this house that dirty them up! The crumbs all over the floor mean we have little hands learning how to use silverware. All of the screeching and laughing means we have a sister and brother in this house who adore each other. I am thankful for every second I get with the people I love. Whether I am playing games with them, coloring, painting, working around the house, watching TV with them, shopping with them, working out with them or sharing a meal. Every person who is in my life is so valuable to me. The Melton's situation has reminded me that we are only guaranteed this very moment on earth. We don't know God's plan and we don't know when he will call us or our loved ones home. Take the time today to pick up the phone and call someone you love just to chat. Spend an extra minute in that embrace before running off to start dinner. Let them splash water on the bathroom floor just for fun. Read an extra bedtime story. Don't turn on the TV this evening. Invite a single mom out for lunch or over for dinner. Wake up each day and ask yourself, "What can I do today to make someone's day special." It doesn't matter if it is your kids, spouse, mother, father, brother, sister, friend or a complete stranger. Just do it. You may not have another chance. If you are the "prayin' kind" please pray for Holly, Ashtyn and Lauren. Pray that they feel the presence of the Lord more than ever right now. Visit their blog and send a positive thought or a Bible verse. Have a blessed day!

Wednesday, March 19, 2008

LONG time, no post!

So sorry! My laptop has officially earned "paperweight" status so computer time is hard to come by. I missed a few very important dates!! First of all, Stephanie turned 34! HAPPY BELATED BIRTHDAY STEPH!!! Second, Tuesday was her last chemo treatment for this round!!! She now gets a month off (I think) and then she will start radiation and continue with the Avastin. Radiation will be 5 weeks everyday. We are hoping that means Monday through Friday. Then she will go in for the Avastin every other week like she has been but it will only take a few hours rather than all day. She will also be getting a CT scan as well as a PET scan sometime in the near future to see what there is to see. Dr. Hoos has also mentioned exploratory surgery after treatment in order to make SURE that there isn't anything left. So that's the scoop!

We have all been busy filling out our brackets for the NCAA tournament. Drew and Claire will be participating this year. We are letting them pick their own teams. Should be VERY interesting!

Hope everyone is drying out after almost a foot of rain!!! We were thinking about starting our arc yesterday. We have plenty of scrap wood after the ice storm! Have a great day and HAPPY SPRING!!!!!